How fear, delays and withheld support crush disabled people and carers.

This article documents lived experiences within the UK's systems affecting carers and disabled people. The patterns described here are not isolated incidents — they reflect systemic issues that affect millions of unpaid carers across the country.

The system is not broken. It is working exactly as designed — to absorb, deflect, delay, and exhaust.

Every hour spent navigating bureaucracy is an hour stolen from care, from rest, from life itself.

The Pattern

Across health, councils, benefits, telecoms, insurance, housing, and every other sector, carers encounter the same exhausting pattern:

• Something goes wrong
• You are told to complain through "proper channels"
• The channels lead to more channels
• Deadlines expire while you wait for responses
• Eventually, you give up — exactly as designed

Why This Matters

The 5.8 million unpaid carers in the UK provide care worth an estimated £184 billion per year — more than the NHS budget. They do this while receiving, at most, £83.30 per week. Many receive nothing.

When systems fail them, they are expected to navigate a bureaucratic labyrinth that would challenge a full-time professional advocate. They are expected to do this while providing 50, 70, 100+ hours of care per week.

The complaint system is not broken. It is working exactly as designed.